I have the condition known as HS. [Hidradenitis Suppurativa] It is not a well known condition for a number of reasons, some of which I hope to make clear on this site. These pages are primariy for other HS sufferers and contain information about how I have coped with the condition for thirty years, yet only actually diagnosed in [2003]. There are tips and links dotted about the site and loads of info
This condition is painful and embarrassing and has made my life miserable for some time. But a couple of years ago I had cancer and nearly died - since then I have come to view my HS in a different light. I no longer give in to it and let it rule my life. I discovered ways to give me an element of control over it and now I say FUCK HS! - and take the piss out of my condition......So, do not expect sympathy here, rather learn to laugh at HS, belittle the condition by positive attitude and humour. I call it sarcastic pain control. And don't rely on god either. I seriously doubt if the creative [and destructive] force of the universe will come rushing to your aid surrounded by a healing chorus of dancing angels. Look after yourself and take on responsibility for your condition and your life. If you cannot live with HS then change your life-style to encompass it. We don't have a lot of choice!