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I
have the condition known as HS. [Hidradenitis Suppurativa] It is not
a well known condition for a number of reasons, some of which I hope
to make clear on this site. These pages are primariy for other HS sufferers
and contain information about how I have coped with the condition for
thirty years, yet only actually diagnosed in [2003]. There are tips
and links dotted about the site and loads of info
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condition is painful and embarrassing and has made my life miserable
for some time. But a couple of years ago I had cancer and nearly died
- since then I have come to view my HS in a different light. I no longer
give in to it and let it rule my life. I discovered ways to give me
an element of control over it and now I say FUCK HS! - and take the
piss out of my condition......So, do not expect sympathy here, rather
learn to laugh at HS, belittle the condition by positive attitude and
humour. I call it sarcastic pain control. And don't rely on god either.
I seriously doubt if the creative [and destructive] force of the universe
will come rushing to your aid surrounded by a healing chorus of dancing
angels. Look after yourself and take on responsibility for your condition
and your life. If you cannot live with HS then change your life-style
to encompass it. We don't have a lot of choice! |
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