DO NOT SWEAT!!
  • Avoid manual work which will make you sweat
  • Wear thin cotton clothing - Baggy Trousers and Long shirts - no underwear!
  • Keep cool packs in the freezer
  • A plant sprayer filled with iced water can cool you down quickly
  • A fan keeps you cooler - I have mine beneath the desk, blowing on my groin
  • Stay in the shade, keep still, wear white or light grey
  • Take cool baths or showers

THE PAIN!!

  • Keep a good supply of strong painkillers with you at all times
  • Get drunk occasionally
  • Use Herbs
  • Learn to live with it to some extent
  • Never make plans unless you have to
  • Take cool baths or showers
  • Use cool packs

THE MESSY TIMES

  • Keep a good supply of dressings
  • Draw them out with Magnesium Sulphate
  • When burst or lanced, flush them out with Saline Solution
  • Sanitary Towels are good for padding and absorbing the sites
  • Use cool packs
  • Take cool baths or showers

THE DEPRESSION

  • Lose the embarrassment by talking about the condition to friends and family
  • Show them pictures so that they know what you are dealing with
  • Avoid antidepressants they cannot 'cure' the depression and there is no 'cure' for the condition
  • Do not dwell on the past or the condition itself, live now
  • Stop worrying, stress is your enemy. Learn to live with and around the condition

Us human beings are the most adaptable creatures on this earth. We can ADAPT to any environment, any culture, any food source and we can adapt to live in pain and discomfort.

When I was first diagnosed with this condition I did not believe it was for life. I suffered by ignoring the condition, hoping it would run it's course, and go away. I have now learned to live with it but it has made radical changes to the way I live, my finances and my perceptions of lifestyle. I do not work, I live on benefits. This means that I have what could be seen as a poor lifestyle, but this is not the case


  • No Job means no travelling = no need for a car

    No social meetings = no need for clothing

    Medical expenses are free

    Shopping is local

I now live a life with no stress. I eat a healthy diet, I do not have to travel or walk around in heavy clothing. My love is at home with me, we have time to be together